How Autism impacts mothers in a selected autism center in Karachi, Pakistan- A qualitative study

This qualitative phenomenological study explored the experiences of mothers of children with autism spectrum disorder (ASD) in Karachi, Pakistan. The research was conducted at a government-run autism rehabilitation center over a period of six months. Twenty-five mothers of children aged 3 to 18 years, enrolled in the selected facility, participated in the study. Data were gathered through two focus group discussions and seven in-depth interviews. It was found that mothers face significant challenges at personal, family, societal, and support systems levels. Key themes included the maternal emotional journey, interpersonal relationships, societal perceptions, access to support services, and adaptation over time. The study highlights that mothers of children with autism in Pakistan experience higher levels of stress. In conclusion, removing misconceptions and improving access and quality of services for children with autism and their families is crucial for easing their burden.